Wednesday, June 27, 2018

When You Have to Break Bad News

Vol. 29 / No. 3  

A hands-on program helps clinicians avoid being a ‘Google Doc.’
A bad experience with an uncaring or distracted clinician can be nearly as harmful to patients and their families as a dire prognosis, according to Anthony J. Orsini, DO, a neonatal and perinatal physician from Orlando, FL. Dr. Orsini is the creator of the Breaking Bad News (BBN) program, a training program that helps healthcare professionals improve compassionate communication with patients and their families. Dr. Orsini was a guest speaker at the recent iaedp symposium in Orlando, FL. 
Dr. Orsini explained that only about 10% of physicians have any formal training in dealing with delivering bad news to families, and most feel unprepared for and even fearful of this challenge. Part of the hesitation and fear involves anxiety about making mistakes or being misunderstood. He noted that police officers actually have more training than doctors about how to compassionately communicate with families when a loved one has a crisis, and the prognosis is poor.
Dr. Orsini developed the BBN course to help change this. In the program, healthcare professionals participate in improvisional training sessions with professional actors. The sessions are videotaped and watched remotely by a panel of trained physicians and non-medical instructors. The participants then watch the videotapes of their sessions with the physicians and instructors. Over the past 5 years, more than 600 residents and physicians and practitioners in many specialties have been trained; this year, 120 healthcare professionals in 5 states are scheduled for BBN training. 
Changing a long-time culture of neutrality
Dr. Orsini noted that from the turn of the last century and until recent times, clinicians have been taught to be neutral or detached when dealing with families in crisis. From the original model of doctors as comforters, the modern direction  has been to be more detached and scientific. There are many reasons for this, including a lack teachers and role models, and mostly, a lack of training in delivering bad news. A lack of compassionate communication then leads to mixed messages. Dr. Orsini pointed out that just as W. C. Fields said, “It’s all in the delivery.”
Dr. Orsini also advised the audience members to avoid being what he called a “Google Doc,” or a clinician who is excellent at delivering information only. The meeting with family and patients is not all about providing information, he said, but instead is about forging a trusting relationship with the health care team, including doctors, nurses, and nurse practitioners. Not doing so can harm the patient and family, lead to anger, or even to a lawsuit, he added.
Better ways to communicate bad news
Dr. Orsini also gave a number of tips about better communication in crisis situations. Unlike previous years when the emphasis was on science and new medical techniques, today’s patient demands a relationship with the clinician, he said. When you must deliver bad news or a poor prognosis, the clinician needs to position herself or himself for success from the moment he or she walks into the room, he added. In what he calls the “bracing moment,” Dr. Orsini offered advice about starting a difficult conversation. One way to accomplish this in a compassionate way is to begin the conversation with a review of the situation so far, establishing what the family and patient understand. One suggested way to start the conversation is to say, “Tell me your understanding of what is going on,” Dr. Orsini said. He advised the audience to work on their observation skills, remembering that they are being observed as well. Our brains make 300,000 to 1 million observations per second, but the brain can’t make 2 analyses at a time, he said. Seventy percent of all language is nonverbal, he added.
Clinicians’ body language matters
Body language is a large part of the process, he said, and even the way a clinician takes a seat in the conference room can be important. It helps to think of the meeting as a “chat” with family members, and not to assume a pose or posture. Two helpful actions that can make a big difference are to keep the hands above the table and to be seated close enough to the family members to reach out a comforting hand when needed. Crossed legs and crossed arms can “push away” family members, so an open and trusting stance is much better, he said. Verbal and nonverbal communications should match; when they do not, confusion, anger, and mistrust can occur.
Dr. Orsini also advised avoiding “blindsiding” patients with the bad news, and instead to gradually break the news, using terms such as “I am concerned, or “I am worried that you might also be concerned,” and then to compassionately communicate a combination of knowledge and concern about what has happened. Sometimes silence can be a powerful tool, too, he said, particularly when the family members may be stunned and silent at the bad news.  A rabbi once told him that in such situations it is best to “just say you are sorry and shut up,” he said. 
Finally, Dr. Orsini stressed the importance of being specific about what is next for the patient and family, and to manage the conversation. The goal here is to help the family avoid feeling abandoned, he said. Some ways to do this include offering to meet with them at a later time, to follow up with your business card or telephone number, and to assure them that you are going to help them get through this rough stage.

ARFID: ED or Feeding Disorder?

Vol. 29 / No. 3  

Untangling the overlap between the two disorders.
Avoidant-restrictive food intake disorder (ARFID) is listed as a current diagnosis in the Diagnostic and Statistical Manual of Mental Disorders, fifth edition (DSM-5). Drs. Grace A Kennedy, Madeline R. Wick, and Pamela K. Keel, from Florida State University recently reviewed the  medical literature from the last 3 years to compare ARFID’s similarities to and differences from feeding disorders and eating disorders (F1000Research 2018, 7(F1000 Faculty Rev) doi:10.12668/f1000research.13110). 
The authors explored the general disagreement about how the disorder should be categorized: some propose that ARFID be viewed as an eating disorder; however, others suggest that ARFID is actually a feeding disorder better grouped in the same broad category as pica and rumination disorder. Until recently, ARFID has been grouped in that broad category. (See also the lead article, “A Broad View:  Disordered Eating on the Autism Spectrum”.)
A feeding disorder?
 Using its official definition, ARFID can be diagnosed only when weight or shape concerns are absent. There is also the matter of nasogastric feeding in ARFID vs. AN or BN: children with ARFID are more likely to accept the use of nasogastric feeding than are patients with eating disorders. Young patients with ARFID also have less anxiety about taking in calories and much more fear of choking. Treatment patterns differ: children with ARFID are younger when they begin treatment, and are less likely to be self-referred for treatment compared with children with AN or BN.
An eating disorder?
A case could also be made for ARFID being an eating disorder. Children with ARFID typically are at low weight, and as such are thought to require a multidisciplinary team. Like children and teens with AN, those with ARFID have strict food rules about what they can and cannot eat.  Many aspects of treatment are similar and some reviews of treatment delivered show little difference, though whether this represents treatment patterns as they currently exist or the treatment needs of  people with AN or ARFID is not fully clear.
Crossover occurs. In one study, 12% of patients with ARFID transitioned to a diagnosis of AN (Int J Eat Disord. 2014;47:495). The authors note specific similarities to non-fat-phobic AN but point out that children with ARFID want to gain weight rather than to lose it. There is also a gender difference, with a greater percentage of boys than girls with ARFID, in contrast to patients with AN or BN.
Taking a new view
Ultimately, the authors suggest viewing ARFID as both an ED and a feeding disorder. ARFID may in fact “represent the missing link between these differing types of disorders,” according to Dr. Kennedy and colleagues.

Cardiac Abnormalities among Young Males with AN

Vol. 29 / No. 3  

Anorexia nervosa affects the heart by decreasing its mass and function. According to a recent report  at the International Conference on Eating Disorders in Boston, young men with anorexia nervosa-restrictive subtype (ANR) have abnormal decreases in left ventricular cardiac mass, with changes in diastolic filling but without statistically significant changes in left ventricular function. Antonio Bano-Rodrigo, MD, PhD, and researchers at Universitario Nino Jesus, Madrid, and the National Autonomous University of Mexico, Mexico City, performed echocardiographic studies in 40 male patients diagnosed with ANR and a control group of 40 healthy adolescent males. Both study groups were from 9 to 20 years of age. 
Dr. Bano-Rodrigo reported that males with ANR had body mass indexes (BMI) below 19 ± 16.1.7 kg/m(mean: 16± 1.7 kg/m2), while the mean BMI for the control group was 20.8 ± 2.3 kg/m2. M-mode and color-Doppler-echocardiography were performed for all subjects. Mitral E and A inflow waves and also E/A ratio were analyzed for all patients, and left ventricular function was calculated for each. Diastolic E and A waves were abnormally low, a statistically significant finding, with increased E/A ratio compared to controls. Meanwhile left ventricular function was normal in both groups. The findings were similar to those seen in with ANR.  The authors recommend following up all patients with these abnormalities to determine the severity of the changes in the cardiovascular system.

Eating Disorders Coalition Urges Important Mental Health Parity Changes During Federal Agency Comment Period to Help People with Eating Disorders Receive Life-Saving Treatment Coverage

FOR IMMEDIATE RELEASE:

Eating Disorders Coalition Urges Important Mental Health Parity Changes During Federal Agency Comment Period to Help People with Eating Disorders Receive Life-Saving Treatment Coverage
WASHINGTON, D.C. (June 25, 2018) - This past Friday, the Eating Disorders Coalition submitted mental health parity comments for an open comment period to the Department of Labor, Department of Health & Human Services, and Treasury ("The Departments"), urging strategic changes in mental health parity guidance to better assist those affected by eating disorders to receive treatment coverage.  In response to 21st Century Cures requirements and a September 13, 2017 comment period, the Departments released "Proposed" documents for mental health parity on April 23, 2018, including the following documents: Proposed FAQs Part 39Department of Labor 2018 Report to Congress: Pathway to Full ParityFY2017 MHPAEA Enforcement Fact Sheet2018 MHAPEA Self-Compliance ToolReviewed Draft MHPAEA Disclosure TemplateHHS Action Plan, with an opportunity for public comment by June 22, 2018.
The Eating Disorders Coalition's comments focus on the Proposed FAQs, Self-Compliance Toolkit, and Disclosure Template, and address pending issues around exclusions for specific disease subcategories like binge-eating disorder, fail-first policies, provider reimbursement rates and network inadequacy, residential treatment coverage, disclosure, and Freedom of Information Requests, among other items.

"The 2008 bipartisan Mental Health Parity and Addiction Equity Act sought to stem the tide of insurance-coverage discrimination of those affected by serious mental illnesses like eating disorders. Unfortunately, the beneficence of the Act is too frequently undercut by plans and polices fundamentally inconsistent with mental health parity, leaving American families to make difficult financial decisions for their family's health," said Eating Disorders Coalition Board Vice President Chase Bannister. "We are certainly encouraged by the Departments' initial steps to encourage insurance coverage for eating disorders, as the present state is untenable. We remain hopeful that the true promises of mental health parity will someday be kept to the ultimate assignees of trust-the public."
Eating disorders, including anorexia, bulimia, and binge-eating disorder, affect 30 million Americans during their lifetime, including people of any age, gender, body size, socioeconomic status, and race.[1] Eating disorders have the highest mortality rate of any psychiatric illness[2], with suicide rates being 23% higher than that of the general population.[3]
The Eating Disorders Coalition (EDC) is a Washington, D.C.-based, federal advocacy organization comprised of treatment providers, advocacy organizations, academics, parents of children with eating disorders and people experiencing eating disorders nationwide. Additional resources can also be found at www.eatingdisorderscoalition.org.


Friday, June 8, 2018

Psychotherapeutic Treatment for Anorexia Nervosa: A Systematic Review and Network Meta-Analysis

 Background: The aim of the study was a systematic review of studies evaluating psychotherapeutic treatment approaches in anorexia nervosa and to compare their efficacy. Weight gain was chosen as the primary outcome criterion. We also aimed to compare treatment effects according to service level (inpatient vs. outpatient) and age group (adolescents vs. adults). Methods:The data bases PubMed, Cochrane Library, Web of Science, Cinahl, and PsychInfo were used for a systematic literature search (until Feb 2017). Search terms were adapted for data base, combining versions of the search terms anorexia, treat*/therap* and controlled trial. Studies were selected using pre-defined in- and exclusion criteria. Data were extracted by two independent coders using piloted forms. Network-meta-analyses were conducted on all RCTs. For a comparison of service levels and age groups, standard mean change (SMC) statistics were used and naturalistic, non-randomized studies included. Results: Eighteen RCTs (trials on adults: 622 participants; trials on adolescents: 625 participants) were included in the network meta-analysis. SMC analyses were conducted with 38 studies (1,164 participants). While family-based approaches dominate interventions for adolescents, individual psychotherapy dominates in adults. There was no superiority of a specific approach. Weight gains were more rapid in adolescents and inpatient treatment. Conclusions: Several specialized psychotherapeutic interventions have been developed and can be recommended for AN. However, adult and adolescent patients should be distinguished, as groups differ in terms of treatment approaches considered suitable as well as treatment response. Future trials should replicate previous findings and be multi-center trials with large sample sizes to allow for subgroup analyses. Patient assessment should include variables that can be considered relevant moderators of treatment outcome. It is desirable to explore adaptive treatment strategies for subgroups of patients with AN. Identifying and addressing maintaining factors in AN remains a major challenge. Front Psychiatry. 2018 May 1;9:158. doi: 10.3389/fpsyt.2018.00158. eCollection 2018.

This is the final week to call your Representative and ask for their support for a GAO study on eating disorders prevention and treatment for military members!

Servicemembers and their families have higher rates of eating disorders than the civilian population. We are asking our Representatives to sign-on to a letter requesting the Government Accountability Office to conduct a study on:
  • What steps the military is taking to screen for and prevent eating disorders within servicemembers during the entire life cycle of service
     
  • How many military members and military families sought treatment for an eating disorder
     
  • A comprehensive review of the availability and access to eating disorder treatment for military members and their families
The letter is led by Representatives Seth Moulton (D-MA) and Walter Jones (R-NC) and can be read here.
Please help us build support for this important study by contacting your Representative!

The deadline for your Representative to sign-on to the letter is Friday, June 8th.


"Hello, my name is _____[FULL NAME] and I am a constituent from _____ [CITY, STATE].

I'm calling to ask the Representative to support the bipartisan letter led by Congressmen Jones and Moulton currently circulating in the House. The letter requests a comprehensive GAO study be conducted on how the military screens and prevents eating disorders within servicemembers and the availability and access to treatment for military members and their families.

It is important to me that the Representative sign-on to this letter because...
[ADD YOUR REASON WHY YOU WANT TO KNOW HOW THE MILITARY ADDRESSES EATING DISORDERS]

Thank you."
 



Thank you for taking action!
 

The Importance of Accepting Your Messy Self

The Importance of Accepting Your Messy Self

By Leora Fulvio, MFT
If I had to winnow down the recovery process into one sentence, I’d give you four short words:
Be kind to yourself.
But if we all knew how to do this, there wouldn’t be multiple in-patient treatment programs, psychiatrists prescribing various psychopharmacological meds and websites and seminars dedicated to the process of recovery. Heck, I wrote a 300+ page book on the topic myself.
So why, if it’s so simple, does it seem so difficult?
Eating disorders are conditions of self-hatred, a lack of self-acceptance, impatience with oneself, a disconnection from the self and from others. Eating disorders are also a distinct embodiment of fear. Our eating disorders are a manifestation of all the ways that we believe ourselves to be not good enough, totally unacceptable, and unworthy, and this is what we do to ourselves when are disconnected from our body and spirit.  We are afraid of being rejected, of people not loving us, of being left by our lovers, our partners, our families, of not being good enough, of being completely alone… and so we try to take control. We can’t control other people so we do our best to control our bodies in order to ensure that we are not rejected and that love stays with us. When we try to control our bodies rather than to love and connect with them, we become disembodied and disconnected. In the battle for control, nobody wins. The rejection that you are so desperately avoiding with an eating disorder feels more alive and more pervasive because you are actually rejecting yourself.
So, if a belief that we are not good enough and a fear of being rejected by others are maintaining factors, then the cure should be easy — self-love and self-confidence and self-security. But it’s not. Because all of these fears become incredibly intertwined with survival. We are afraid that if we muster up the courage to love ourselves, we will be alone. We will die alone. We are afraid that self-love means we are giving up on ourselves and thus giving up on ever being loved by anyone else. We have to please everyone else so that nobody leaves us. But… what if everyone feels that way? What if everyone is as afraid as we are. Should everyone be doing this?
It’s simple to say, “I’ll be kind to myself after I lose ten (or 50 or 100 or 200) pounds,” but to say, “I accept myself right now, for who I am in this moment,” and to treat yourself the way you treat a best friend, with love and kindness rather than judgment, anger and punishment… that’s where the real healing work is.
Sure, it’s easy to believe that you love yourself when you’re “being good” but what about when you mess up? The real test is ¾ can you love yourself when you’re a total mess?  Because you’re going to mess up. I promise you that. Life is messy. Being human is extremely messy. We are born into a big mess (no birth is clean as you all know…) and each day at least something messy happens. We are messy both physically and emotionally. But that’s okay. It’s all part of the human experience. And we are all, all of us very messy. Even those of us who are obsessively clean ¾ still messy. And that’s okay. It’s all okay. Because for all the mess there is a purity and a perfection that is 1 million percent beauty. This is the real test; can you love yourself when you’re messy?  This is the practice.
Next time you are messy, next time you binge, or purge, or overeat, or undereat, or overexercise, or drink too much, or yell at your kids… I want you to thank yourself for giving yourself the opportunity to practice being kind to yourself when you’re not “being good.” And then, give yourself credit for being human, forgive yourself, think about how to be kind to yourself in that moment and how to treat yourself with love and compassion.
The irony is that once you start to be kind to yourself, the real work of recovery begins.
So herein lies the challenge… learning to accept yourself at your messiest. Learning how to love that person who has their head in the toilet, their finger down their throat, the one who is elbow deep in a binge, who can’t get off that treadmill. Because when you are alone with that eating disorder – and we know that eating disorders love to “get us alone…” when we are alone with ED in our heads, we need that loving voice to come and put a gentle hand on our backs and say, “it’s okay! It’s okay! I promise you, it’s okay! You are perfect and whole and complete in this moment, you are human, you are a very real human being and you’re just trying to cope with your fears and your pain… but you know what? I love you! I love you no matter what! I love you when you’re sick or healthy, I love you no matter what your size is and I love you when you perfectly imperfect…”
You need this voice inside of you. Because without it, you’re trapped alone with ED in your head. And that’s just no way to recover. Recovery needs self-love and self- advocacy in order to unfold and flourish.
So how do we practice self-acceptance and self-kindness?
It starts with a noticing. Whenever you notice yourself thinking unkind thoughts about yourself or berating yourself, try to redirect that thought. Tell yourself, “I am human, I am doing the best I can, I am working toward full recovery… body, mind, and spirit.”
Take a deep breath and notice how it feels in your body to accept yourself rather than to reject yourself. Then, let yourself be in the place of self-kindness, even if for a brief moment. As you practice this, each of those brief moments become longer moments, which eventually creates a new way of thinking, feeling, and behaving.  Notice with kindness, acceptance, and move forward with your next step for recovery.